PID cases in Malaysia was first captured in 1979 and the reported number has steadily increased. However, the actual disease frequency of PID in this country is unknown due to the absence of a national patient registry for PID.

In 2020, Universiti Sains Malaysia started an effort to create USM PID REGISTRY, the first of such database in Malaysia.

The Registry is designed to store patient data for use in clinical care and advance research and publication purposes. The data is vital for advancing the demographic and treatment research to help improve the quality of life of PID patients in Malaysia.

The registry’s fundamental components are demographic information, treatment, follow-up data, diagnosis, laboratory reports, and biobank data. The accumulation of patient and diagnosis data, stored into the database, will also help to better the precision in diagnosis assessment and treatment of PID cases.